Wendy and David launched a yeast-powered drug repurposing project for their son Alexander, who has an ultra-rare mitochondrial disease. One of the top hits is on the WHO's List of Essential Medicines.
Absolutely incredible to read this article, as it gives me hopes for my 15 month old son who has just been diagnosed with epilepsy, with rare gene affected FARS2. Neurologist have a hard time controlling seizures and told me there is no cure for the illness that is unknown causing this. He has been in the hospital since 30 may 2024 as I noticed a bit of a tremor in his right arm and hand, and has now progressed as he is having full tonic clinic seizures, neurologist have tried many anti epileptic meds and nothing is working, I read this article and this brought hope. I don’t have much financially, but have hope for cure and treatment.
Mother of a lovely boy who just wants to thrive and live life to the fullest.
Absolutely incredible to read this article, as it gives me hopes for my 15 month old son who has just been diagnosed with epilepsy, with rare gene affected FARS2. Neurologist have a hard time controlling seizures and told me there is no cure for the illness that is unknown causing this. He has been in the hospital since 30 may 2024 as I noticed a bit of a tremor in his right arm and hand, and has now progressed as he is having full tonic clinic seizures, neurologist have tried many anti epileptic meds and nothing is working, I read this article and this brought hope. I don’t have much financially, but have hope for cure and treatment.
Mother of a lovely boy who just wants to thrive and live life to the fullest.
Nuraawale@gmail.com